Charity: Stickler Syndrome UK (SSSG)
|Area of Operation:||Nationwide|
|Pledge level:||£1300 including £50 registration fee|
Stickler Syndrome is a genetic condition which affects the body's connective tissue. Main symptoms can include: myopia, retinal detachment, joint disease, cleft palate and hearing loss. We provide information and support for people affected by Stickler syndrome and for professionals by means of leaflets, conferences and newsletters about advances in the medical world.